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The village where people melt away

Discussion in 'The New Monster Thread' started by fitness@home, May 7, 2014.

  1. fitness@home

    fitness@home Silver

    The village where people melt away: Brazilian farming community made up of skin disease sufferers for whom working in the sun is a way of life... and potentially fatal
    • Araras has largest group of people suffering from xeroderma pigmentosum
    • Those with disease, also known as XP, are sensitive to ultraviolet rays
    • Is a burden for town in country's midwest where outdoor work is vital
    • Twenty people in the population of 800 are said to have genetic condition

    Read more: http://www.dailymail.co.uk/news/article-2621553/The-village-people-melt-away-Brazilian-farming-community-skin-disease-sufferers-working-sun-way-life-potentially-fatal.html#ixzz3144kQVfY

    What a horrible disease!
  2. elizabeth north

    elizabeth north New Member

    Dear Fitness@Home... Love your CS Lewis quote. I'm a big fan!

    I have a friend whose 2 yr old daughter was just diagnosed with XP. I'm interested what Dr K has to say about this. Sounds like a severe mineral imbalance (copper toxicity?), and an environmental imbalance to me. This little toddler's family lives in a recreational vehicle. I'm sure the electromagnetic field all around her is very toxic. Now, her condition seems it will only get worse because she is outdoors even less; no sunlight, no grounding! Her dad is gone all the time, travelling for work, and her mom is vegan! The kid is doomed! What can I share with them to help them see the light. Pun intended!
    fitness@home likes this.
  3. Jack Kruse

    Jack Kruse Administrator

    This and retinitis pigmentosa share a lot of things.
  4. elizabeth north

    elizabeth north New Member

    Jack, Thank YOU for your wisdom, and generosity in sharing it. You provide a 'medical' voice that is unique and sensible and a blessing!

    Another favorite quote: "You can't change people's blind spots. They can't see them, that's why they're called blind spots. Just be loving. They'll see through them when they're ready."

    Yes, a lot of people are ignorant, and it's sad; many of those entrusted to keep us healthy, i.e. doctor's, have been deceived and left ignorant too!
    Thanks for sharing the thread. Can I refer my friend to call you about her 2 year old? Their family life is hell right now, and they could use a ray of hope. :>)
  5. JanSz

    JanSz Gold

    This "be loving" thing feels like a fraud to me.
    It sucks to high heaven.
    I wish there was a better solution.
  6. elizabeth north

    elizabeth north New Member

    Ahhh, that's because 'being loving' isn't a thing.
  7. drezy

    drezy Gold

    Jan and I are very different people but I'm with him on this one.

    "being loving" while someone you do actually love chooses to make decisions that prompt mother nature to recycle their molecules faster doesn't really feel productive or even sane. I think I agree with Jan on that.
  8. elizabeth north

    elizabeth north New Member

    WHAT IF your focus was to be loving, instead of how fast someone's molecules recycle?

    Who's to say what is productive or sane?

    Being loving is a choice.

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