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Susie's Optimal Journal

Discussion in 'My Optimal Journal' started by SusieQue, Jan 24, 2019.

  1. SusieQue

    SusieQue New Member

    Age: 44
    Height: 5'8, Weight: 115

    Live in Estero, FL (SW Florida near Naples)

    Main Health concerns: Cognitive Issues, Chronic Fatigue, EMF sensitivity, Acid Reflux, Hiatal Hernia, Poor Circulation

    I have been struggling with a suppressed immune system and chronic infections, heavy metals, mold exposure (CIRS) and parasites for many years now. I have had a declining brain function which is very concerning as I am only 44 and a single mom of 2 boys. I have always known that I feel so much healthier at the beach, but never knew why until now. I have started sun gazing at sunrise, getting 1-2 hours of sun during the day without sunglasses, blue blocking glasses at night and while using devices, grounding and cold showers and swimming in my cold pool. I try to go to the beach as often as possible, but we have had a lot of red tide issues the last year. I have had EMF issues for several years, so I already have a low emf house with no wi-fi. i also choose to live in a community that is way out and backs to many miles of preserve. There is really bad cell reception where I live, which I like. But lots of new communities are being put in, so I am not sure how long that will last.

    Health History:

    I grew up in Hawaii and was at the beach and barefoot for my first 18 years, but I still had a ton of health issues. I had chronic ear infections starting at 2 years old, followed by antibiotics and chronic yeast infections. I was given fluoride pills every day starting at 1 year old thru age 15 years old. I had 4 teeth that came in without enamel which they now know was from too much fluoride. When I got my period at 13 years old, I got such horrible cramps that I was put on birth control pills and prescription pain killers that I stayed on for 15 years. I now believe the cramps were due to low progesterone levels.

    Growing up I had chronic respiratory infections and bronchitis. Every time I got a cold, it would get in my lungs and I would cough for 2 months or longer. I was always sick. In high school I started having a lot of back pain, which has continued until present. I have hundreds of trigger points, constantly tight muscles and lots of back and neck pain. I do not have fibromyalgia because the trigger points are not in the right places. I was told it is chronic myofascial pain.

    I have experienced chronic fatigue, exercise intolerance, heat intolerance and cold intolerance for many years. I also was told I might have sjorgen’s syndrome, but I tested negative for it. I have extremely dry eyes, mouth, skin, etc and chronic dehydration - show low ADH on tests. I have also been told I have raynaud’s from my poor circulation and that I probably have EDS because of multiple symptoms including hypermotility.

    I tend to have low blood pressure 90/60 and was experiencing major hypoxia while living in Colorado. My normal blood ox level was 90 and it would drop to 85 as soon as i started walking. I went to heart docs and lung docs and they could not find anything wrong, but told my i had tachycardia and bradycardia. Just a month ago I had an EEG and was told I have a right bundle branch block. My blood oxygen level is back to 99 now that I live in Florida again.

    I have had 2 pretty bad mold exposures in the last 10 years. I have been tested for Lyme disease which was inconclusive. I was tested for the dreaded genetic variants for mold / CIRS and I have one for mold and one multi susceptible. I had some disturbing lab results in regards to mold in 2016. My CD57 was 6 at one point and my TGFB1 was 24,000+. They came down a little when we tested 2 months later. I believe my CD57 is still pretty low, but I have not been retested lately.

    For about a year, I have experienced periods of really bad acid reflux (GERD) to the point to being up all night with my chest and throat burning. The worst was last August 2018 and it got so bad that I started Prilosec and have not been able to get off of it. I avoid pharmaceutical drugs at all costs, but the reflux was unbearable and my teeth were in extreme pain from it. I would like to get off of these ASAP. It is my top priority. I had an endoscopy and they said I have a hiatal hernia and my LES flap is not closing. I have no been able to eat meat since August or my acid reflux gets much worse. I read somewhere that Jack recommended putting ice packs on the stomach and laying in the sun to help with digestion issues. Is that recommended for me?

    My brain function has not been good the last few years. Both my short term and long term memory are horrible. i have trouble with word recall and sometimes recognizing faces. I constantly have brain fog and get migraines several times a month.

    My mother' mother had chronic digestive issues and ulcers. She ended up dying of colon cancer in her late 60's. My mother has diverticulitis and hypothyroidism but other than that is really healthy and active for 74. I have many more health issues that she does. My father developed osteoperosis in his 50's and I believe that I have been experiencing bone loss as well.

    I would love some feedback on getting rid of the acid reflux and getting my heart and brain working better.

    Haplotype Group K1c2

    Methylation SNPS

    COMT V158Mrs4680AA+/+
    COMT H62Hrs4633TT+/+
    COMT P199Prs769224GG-/-
    VDR Bsmrs1544410CC-/-
    VDR Taqrs731236AA+/+
    MAO A R297Rrs6323TT+/+
    MTHFR C677Trs1801133GG-/-
    MTHFR 03 P39Prs2066470GG-/-
    MTHFR A1298Crs1801131GT+/-
    MTR A2756Grs1805087AA-/-
    MTRR A66Grs1801394AA-/-
    MTRR H595Yrs10380CT+/-
    MTRR K350Ars162036AG+/-
    MTRR R415Trs2287780CT+/-
    MTRR A664Ars1802059GG-/-
    CBS C699Trs234706AG+/-
    CBS A360Ars1801181AG+/-
    CBS N212Nrs2298758GG-/-
    SHMT1 C1420Trs1979277AA+/+

    Detox SNPS

    CYP1A1*2C A4889G rs1048943 TT -/-
    CYP1A1 m3 T3205C rs4986883 TT -/-
    CYP1A1 C2453A rs1799814 GG -/-
    CYP1A2 164A>C rs762551 AA -/-
    CYP1B1 L432V rs1056836 GG +/+
    CYP1B1 N453S rs1800440 CT +/-
    CYP1B1 R48G rs10012 CG +/-
    CYP2A6*2 1799T>A rs1801272 AA -/-
    CYP2A6*20 rs28399444 II -/-
    CYP2C9*2 C430T rs1799853 CC -/-
    CYP2C9*3 A1075C rs1057910 AA -/-
    CYP2C19*17 rs12248560 CC -/-
    CYP2D6 S486T rs1135840 CC -/-
    CYP2D6 100C>T rs1065852 GG -/-
    CYP2D6 2850C>T rs16947 GG -/-
    CYP2E1*1B 9896C>G rs2070676 CC -/-
    CYP2E1*1B 10023G>A rs55897648 GG -/-
    CYP2E1*4 4768G>A rs6413419 GG -/-
    CYP3A4*1B rs2740574 TT -/-
    CYP3A4*2 S222P rs55785340 AA -/-
    CYP3A4*3 M445T rs4986910 AA -/-
    CYP3A4*16 T185S rs12721627 GG -/-
    GSTP1 I105V rs1695 AG +/-
    GSTP1 A114V rs1138272 CT +/-
    SOD2 A16V rs4880 AG +/-
    NAT1 R187Q rs4986782 GG -/-
    NAT1 R64W rs1805158 CC -/-
    NAT2 I114T rs1801280 CC +/+
    NAT2 R197Q rs1799930 GG -/-
    NAT2 G286E rs1799931 GG -/-
    NAT2 R64Q rs1801279 GG -/-
    NAT2 K268R rs1208 GG +/+
  2. Jack Kruse

    Jack Kruse Administrator

    Welcome. You are very close to some very bad marine radar in Naples and Tampa area. This is why this area is a no go for my members.
  3. caroline

    caroline Moderator

    welcome Susie.....
  4. Brett Anderson

    Brett Anderson New Member

    Jack, is there anywhere left to go in FLA? The Keys prior the Key West? Siesta Key and Boca Grande have always been sanctuaries, IMO. Sleep excellent, easily slip into mediation on beach, etc.
  5. SusieQue

    SusieQue New Member

    What is "bad marine radar"? I have never heard of that. Are you talking about radar off of boats? I am inland quite a ways and there are no marinas anywhere near me so would I be affected?
  6. Jack Kruse

    Jack Kruse Administrator

    NOAA has them from Apalachicola to US waters distal to the keys up to Miami because of Cuba.
  7. Jack Kruse

    Jack Kruse Administrator

    There is also HAARP arrays all in TB. TB is the worse part of Fla I've tested.
  8. SusieQue

    SusieQue New Member

    Oh, ok. So that would affect the area between Naples and Tampa?

    Jack - would putting ice packs on my belly while lying in the sun help heal my gut?
  9. Jack Kruse

    Jack Kruse Administrator

    Not at this location. I'm sorry to say that this area of Fla is nightmarish.
  10. Annemarie Heise

    Annemarie Heise Gold Member

    Bad Marine Radar?
  11. SusieQue

    SusieQue New Member

    I am now a Gold Member, and have "skin in the game", so I would love some feedback on my situation please. @Jack Kruse
  12. SusieQue

    SusieQue New Member

    Btw, I have been a Gold Member for several weeks now and it still just says "New Member" under my name. When will it change to show i am a paying Gold Member?

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