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Sean's very un-optimal Journal

Discussion in 'My Optimal Journal' started by seanb4, Aug 15, 2013.

  1. seanb4

    seanb4 New Member

    Just had to go to A&E for the second time in two weeks. Extreme stress response this morning from breakfast, heart rate jacked up to 160+ for a good few hours, shortness of breath and a bunch of other crap. Since my heart rate has been ridiculously high for large parts of the day for 5 years now I think it's finally taking it's tole. Been sent home after asking several times for something to be done. Since I have an appointment with a gastroenterologist in 6 weeks he says I would need to get the appointment sped up, I doubt they will.

    As well as all the usual fun my left arm keeps going slightly numb and tingly. I think my heart is struggling.
    I can't wait 6 weeks. I darn't eat or drink anything as it will set my symptoms off. I don't know what to do about work. I don't know what to do about anything... All I can think is to request feeding tube.
  2. caroline

    caroline Moderator

    wish I could offer you something Sean .....I can, at least, send you a big hug.

    So A&E sends you home? they wouldn't keep you in for a couple of days and run tests?

    Surely they must be concerned enuf to check you in and get to the bottom of this???

    Can your Mom and Dad help? other trusted relatives?
  3. seanb4

    seanb4 New Member

    Thanks caroline.

    They kept me in for a few hours and ran several heart tests, the first ones where really high however it gradually reduced to normal. I explained this is because I hadn't eaten since the morning and when I eat my next meal same thing will happen, and that I've been unable to get over 2000kcal recently. He said he sympathises but this no point in keeping me in overnight when there is nothing they can do and that since I was already being seen to by a gastroenterologist it would be best to do everything through him, I asked him several times but he kept saying it was a tricky situation but I need to do it through my doctor...

    Gave me some hyoscine butylbromide, just read up and it seems to be an anticholinergic, isn't this the exact opposite of what I need. It would block the parasympathetic which is what I need to increase. Side effects dry mouth, which I have constantly anyway. Seems it is meant to prevent spasms/cramps by deactivating peristalsis this seems stupid as if you where having cramps its because your body would want to get rid of the substance. Stopping your gut from working would be counterproductive. Don't think I'll be taking these...

    At the moment not going to worry parents, I live with my brother so he can help out if anything goes wrong
  4. seanb4

    seanb4 New Member

    Last night I couldn't sleep at all, no matter how I laid I would get a slight pins and needles in my left arm.
    It feels as though my heart has gotten weaker. It is still beating the same speed but not the same hardness.
    I have been feeling light headed these past two days and short of breath.
    Maybe my heart is not pumping blood around well enough meaning less goes to head and arm numb and tingly.
    Not sure weather to try waiting it out until tomorrow when I will see my GP or go back to A&E tonight...
  5. Lahelada

    Lahelada New Member

    Sean, I would go back to And E NOW highlighting the numb,tingly arm as a symptom. You might get to see a cardiologist as this is a new symptom "unrelated" to not being able to eat.
    Can you drink water ? That may help in the meantime. I do not pretend to understand the hyoscine butylbromide either and would be leery of it too. This could be your second reason to represent yourself in A & E saying that you are worried about taking it with your heart rate problems as they are.

    EDIT: It might seem a strange suggestion but you do need water. When you go back to A& E maybe you should bring water to drink. That way they see you in the middle of what is going on and see what happens if you drink water only which might make them think along different lines.

    Keep us updated . A hug from me as well.
    Last edited: Jul 10, 2016
    Jude and seanb4 like this.
  6. Lahelada

    Lahelada New Member

    How are you today? Did you see the A&E guys again ? Your GP ? Are you taking the meds you were given now? Excuse the barrage of questions.
    seanb4 likes this.
  7. notsoperfick

    notsoperfick New Member

    Sean I am so sad for you, you have tried so hard to tackle this on your own and it seems so unfair that no one appears to take you seriously. One thing that concerns me is the visible pulse and pain in your gut area, whilst some pulsation can be seen occasionally it can also be characteristic of a gastric aneurysm, you may like to ask for this to be checked, it's just done using an ultrasound and it may not be connected at all but I'd want it checking if only to exclude the possibility. I despair of our NHS, whilst it appears to actually have some enlightened GPs now the rest appear happy to be rooted in the dark ages . Just been reading about some poor woman who has all the symptoms of thyroid disorder who has been batted back and forth between GP and hospital and was referred to the psychiatric department where the Polish locum decided she was a hypochondriac depressive and prescribed ADs without telling her! I despair. Seems if you try to make a fuss then you must be crackers.
    seanb4 likes this.
  8. caroline

    caroline Moderator

    How are you Sean?

    I think your parents would want to know ....and give you some much needed support and TLC.
    seanb4 likes this.
  9. seanb4

    seanb4 New Member

    @caroline @notsoperfick @Lahelada

    Spent the last 8 days in hospital. My heart is a lot weaker I think. In the morning and after eating especially I feel really weak, very lightheaded/dizzy, shallow breaths, nausea and my left arm keeps going numb. It must be worn out from the past 5 years of constant palpitations.

    I have been laying down, controlling my breathing, and eating and drinking very little to try and cope.

    I got sent to hospital by my GP and had ECG, ultrasound on abdomen and heart, endoscopy all came back normal.

    The doc I got wasn't great, first thing he said to me was that he had to deal with people vomiting blood etc and that they needed beds and I should probably be seen as an outpatient. I explained that I really wasn't well and he said I would probably get bored in hospital and go home anyway. I only got to see him for like 2 mins a day and before he discharged me he said that they have run all there tests that they can and that I would have to be seen by my regular gastroenterologist as he has more "patience" for my kind of symptoms. Sometimes you get a good one, sometimes a bad one. Very fustrating for me as I know he thinks I am exagerating/hypercondriact yet I can't properly explain myself in the 2 minute per day window.

    I am really worried about my heart, I guess it is reassuring on the one hand that my heart rate and blood pressure where normal but these where always taken whilst lying in bed and I know they skyrocket when I have to move about. Also the ultra sound of heart came back okay. Is it possible to still have heart failure / weakness with these results??? It really does feel as though my heart has significantly weakened recently. It usually pounds very hard, now it pounds still but a lot weaker, combine that with my other new symptoms of lightheadedness/numb achy arm/etc and I am in trouble. I am hoping that something in my gut is just fucking with my vagus nerve causing these symptoms and my heart isn't actually weak...

    Last time I had problems with palpitating I helped it with magnesium oil, ketosis, and cold. Hesitant to use cold again as I know it increases my stress response.

    I am struggling to get near 1000kcals/day without massive onset of symptoms and also struggling with water.

    The gastroscopy report was:
    Hiatus Hernia 3cm.
    Some bile stained gastric fluid present in antrum.
    OGJ and SC junction at 40 cm.
    Diaphramatic pinch at 43cm.

    But he said this was normal. Maybe the hernia is affecting the vagus nerve? Clutching at straws here.

    I cannot continue with work like this, so I think I will have to quit. In the mean time I really don't know what to do.

    I think I will eat ketogenic and as much as possible without over triggering symptoms, use magnesium oil, stimulate vagus nerve and then I really don't know. Only thing I could think that my help would be feeding tube but even that probably won't. Any ideas guys???? I guess I need to hold out for another month before seeing my gastro doc and then suggest something to him...
  10. caroline

    caroline Moderator

    I wish I could give you a hug Sean..... I wish I had something to offer .......

    Can you see your gastro doc sooner? somehow?

    So- your heart beat is normal? blood pressure is normal? bowels? fingernails? [I once had a gastro doc who checked my fingernails and toenails]

    What about Crohn's disease?

    How do you do with protein drinks?

    It seems like your medicare system really sucks .....
    seanb4 likes this.
  11. seanb4

    seanb4 New Member

    The heart beat was between 70-100 lying down and blood pressure kept fluctuating between a little low and high. Thing is I know my heart rate goes way up with any physical exertion so maybe I should request a heart stress test. Also my heart is always pounding, what test would show this?

    Finger nails look relatively normal. Don't know what I'm looking for...

    Negative for Chron's. Protein shakes produce same symptoms, even drinking water does.

    Whenever I consume anything my heart pumps blood to the gut to digest it but it seems this is too much now for my heart to handle.

    Right now as I sit typing this I am very lightheaded, shallow breath, and weak. If I hold my hands up slightly they go numb. Really feel my heart is in trouble. All I have had today is a few sips of water and some potted beef (25okcal). I don't know what I can do.
  12. Inger

    Inger Silver

    Sean, can you go out and lay on the ground? Getting sunlight/natural light in your eyes and on your body?
    This sounds no good. Your body must get energy/electrons..... have you been outside much lately? How much sun and grounding do you get? You cant go to work like that... you need to spend all day outside.... grounded....in the nature.... and get sun too. Rest. and heal. Do you get payed days off work when you are sick? Then you would not have to worry about money and you can heal.... Here we get "illness-vacation" when we go to the doc and we are sick...and those days are payed for too. You need to ask your doc to write those days for you... and better a few weeks. I once got 2 weeks off as I was 20 yo, leaving my boyfriend..just because I told I was depressed. It really helped tho to get healthy/happy again as I had no work stress for 2 weeks and was able to stay home, relax and think things through!
  13. Inger

    Inger Silver

    and you sure need to ask your doc to take your heart beats and blood pressure as you do stuff/eat, etc.. not laying down in bed :confused:

    Take care Sean! ((hugs))
  14. seanb4

    seanb4 New Member

    Thanks Inger, I've just been outside this morning, grounding in the sun but I'm still dizzy,etc as I do it. I think I need something doing directly about whatever is causing this.

    I do get paid but I have had to take the last 2 weeks off sick and don't know how long they will let me have off. At the moment I'm not even really worried about that, I feel as if I dont do something soon I am toast.
  15. Inger

    Inger Silver

    How is the environment you are in Sean? Have you tested it with a meter?
    Are you grounding and tanning outside away from too much nnEMF/smog? Maybe you can make you a bowl of sunwater and sip on it slowly.. just take plenty of small sips all the time as you lay on the ground....
    You probably need to push hard on getting an earlier appointment at the specialist... :confused: you need to tell it is real emergency !
  16. seanb4

    seanb4 New Member

    EMF is relatively ok at my current house, and is zero outside in garden, yeah I'm outside in garden today but still real weak/etc.

    Might book a GP appointment tomorrow if this keeps up.
  17. Lahelada

    Lahelada New Member

    Hiya Sean,

    good to see you. A question ,how was eating at the hospital ? Could you,what was it etc . You will need to drink water and I would make the appt with the GP without fail. Maybe you can demonstrate the fasted heart rate versus the "satiated" heart rate to him and that way he can gain some direct insight.
  18. seanb4

    seanb4 New Member

    Eating was pretty poor, had like a glass of milk / OJ + soup most days, some more some less. Now I am at home it is 250kcal potted beef, and 0.5-1L water. Problem is anything that raises my heart rate sets my symptoms off. So all morning I feel extra weak, dizzy, palps, shallow breath, then when I drink water it increases. I have trouble walking up the stairs. I have fasted before but this weakness etc is something else.
    By afternoon it has calmed down somewhat but still I have to be sat/ horizontal.

    I am going to GP later today.
    caroline likes this.
  19. Linz

    Linz New Member

    Take care Sean. I think you need to INSIST they check your heart after exertion if none of the doctors have done this. The Breakspear Clinic might be able to recommend a local doctor/hospital who will do the right tests for you or a private doctor just to help you can find out exactly what is going on which could make it easier to get the right NHS referral if you need one. Dr Sarah Myhill's website will give you a lot of information relevant for uk but she is not taking on new patients and I think has been restricted from publishing anything about heart problems on her website - but don't just rely on internet information if you need help now.
    seanb4 likes this.
  20. fitness@home

    fitness@home Silver

    Last edited: Jul 21, 2016
    seanb4 likes this.

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