1. Registering for the Forum

    We require a human profile pic upon registration on this forum.

    After registration is submitted, you will receive a confirmation email, which should contain a link to confirm your intent to register for the forum. At this point, you will not yet be registered on the forum.

    Our Support staff will manually approve your account within 24 hours, and you will get a notification. This is to prevent the many spam account signups which we receive on a daily basis.

    If you have any problems completing this registration, please email support@jackkruse.com and we will assist you.

Mucolipidosis type 2 and 3

Discussion in 'Redox Rx' started by Lahelada, Aug 24, 2019.

  1. Lahelada

    Lahelada New Member

    A friend of mine who does not speak English well but nevertheless follows Jack's work albeit not on this forum just had the news that his little girl of 9months suffers from Mucolipidosis 2 and 3, the latter also known as Pseudo Hurler polydystrophy. Apart from the diagnosis the doctors who were really switched on in actually including this in their differential diagnosis could not give any guidelines apart from putting him in touch with a fellow parent with a three year old with the disease. The disease is very rare, 75 cases in the world that are known..

    My friend thinks that the mitochondrial protocol may help with her quality of life and wonders really whether there are any parts of the quantum protocol he should focus on or any practical tips. Eye development may be affected by the disease at some point so it may not be clear how the light pathways will be affected.

    My friend would be extremely happy if Dr Kruse could comment but understands that this may not be possible.

Share This Page