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I finally feel like a success story...

Discussion in 'Success Stories' started by MrPinkies, Dec 5, 2013.

  1. nonchalant

    nonchalant Silver

    I don't understand... are those two girls related?
    Spectacular success!
    MrPinkies likes this.
  2. MrPinkies

    MrPinkies Silver

    First birthday, ever in my life, at a healthy weight... hmmm.... I think I'm going to spend today barefoot in the SUN!!
    Josh and nicld like this.
  3. fitness@home

    fitness@home Silver

    Happy birthday! That sounds like a perfect way to spend it...outside and in the sun :)
    MrPinkies likes this.
  4. MrPinkies

    MrPinkies Silver

    THIS IS SUCCESS... This picture says it ALL...

    Almost exactly a year ago, I was angry with Ryan's OT because she got frustrated (she showed Ryan that she was frustrated) that she worked and worked and worked with Ryan to get him to ride a tricycle.. and he just didn't have the muscles to do it...

    This is my son Ryan, 6 1/2 years old with Autism, very very low muscle tone... ON A BIKE!!!!!!!! Pedaling on his own.. WITH his babysitter on the back of the bike! I think about all of the AMAZING things my son has accomplished over the last year.. and somehow.. this one.. this is AWESOME and AMAZING... and just.. I'm FLOORED at all the things he can now do! I am one very proud Mama...

    Attached Files:

    Jenelle, Alex97232, Martin and 11 others like this.
  5. Hope

    Hope Gold

    Congrats.....so exciting!
    MrPinkies likes this.
  6. nicld

    nicld Gold

    WHOOOHOOOOOOOOO, the sky is not the limit now
    Sistagrok and MrPinkies like this.
  7. caroline

    caroline Moderator

    I am so happy for your whole family. .....and so proud of what you have accomplished ...xo
    Sistagrok and MrPinkies like this.
  8. Gracelind

    Gracelind New Member

    Congratulations! Ryan -- and you -- are inspirations. May this next year be filled with many more wonderful milestones for him and for your whole family.
    MrPinkies likes this.
  9. Phil Escott

    Phil Escott New Member

    Hello to my "neighbour" in the success stories. I've been trying to get round to reading this thread for a while, and now I have. Fantastic story, and wonderful pics. Well done!! :)
    MrPinkies likes this.
  10. sooperb

    sooperb New Member

    You're an inspiration, proving just how big a difference the right prescription can make. Do you spread your success on any Autism sites? I'm sure there are many desperate parents who would be interested and motivated by what you've achieved?
    MrPinkies likes this.
  11. MrPinkies

    MrPinkies Silver

    Yes, I have made my success known with the Autism community, but, not with great feed back. There's a saying with the Autism community- "if you've met one person with Autism, you've only met one person with Autism".. The reason they say that is that in Autism- there are three main categories- social interaction, communication, and repetitive behavior.. Under each of the three categories are subcategories, with subcategories under those subcategories, etc.. Each subcategory is a very specific skill set, separated by age groups.. Each year you get older, a new set of skills are required of you. Each person with Autism has different gaps in their skills, varied by age.. How many gaps you have determines the severity of the Autism.

    Problem: if a parent, for example, ignores the signs and warnings of Autism, and does nothing.. The gaps in the skills gets bigger the longer the child goes without help, the harder it is to catch up... Time never stops, and that's the hard part.. racing the clock and going past their age skill set to actually be officially caught up. The easy read/uncomplicated version: When Ryan was 4, most of his skills were around 1. He gained 2 years by the time he was 5. So.. when he turned 5, most of him was around 3. He gained another 2 years worth of skills in the next year. So.. when he turned 6, most of him was around 5. Does that make sense to you?

    Lizzie, we have COMPLETELY caught her up.. We caught her issues EXTREMELY early and did not wait... We had her in therapies by 8 months old.. She was the kid that didn't cry, coo, smile, track people or toys, straight face, no eye contact etc.. She refused the breast, hated to be cuddled.. she'd pick up toys with her wrists because she didn't want to touch with her hands.. She HATED (and still does) water- like baths/showers.. She had a LOT of sensory issues/SPD (sensory processing disorder). she started to coo at 8 months and then went completely silent at 9 months all the way to 13 months old.. However, by the time she turned 3, she was completely caught up and past her age range skill set. She turned 4 this past February and her skills are starting to be age appropriate and are staying age appropriate. We had slight regressions here and there, but, again, we are hoping that we can drop the label when she turns six. She is in preschool, in a class, without help. She tested out of special education services at the low end of the normal range of functioning. I'll take it. We are still working on sensory issues, but, the majority is controlled with the Ketogenic version of the Epi-Paleo Diet/EMF precautions. Magnetico = Lizzie's BFF.. Last, FINALLY made it to the 5th percentile for weight and sleeps through the night!!!

    Ryan, on the other hand... not so lucky.. yet lucky... Ryan was our first born... He was a GREAT baby.. around 12 months we started to wonder about him.. He stopped making noises, stopped responding to his name.. absolutely no eye contact.. etc etc etc.. Chris was diagnosed with Aspergers a few weeks before Ryan was diagnosed with classic borderline severe Autism, low functioning.. Not even a week after that, I found out that I was pregnant with Lizzie... It was literally like.. Congrats on your pregnancy.. Yes, your kid has Autism.. good luck to you.. and chances are we will see you in two years for your next kid.. That was it.. no plan.. no guidance.. no nothing... We didn't know what to do, so, we did nothing.. When Ryan turned 3, the majority of him was under 6 months old. I finally put my foot down and did research.. We took out MASSIVE loans and did ABA therapy, speech, ot, pt, etc... and we did make some gains with those therapies.. but it is NOTHING compared to the Ketogenic diet, EMF stuff, magnetico, etc. Like Lizzie, we got Ryan up to the 3rd percentile for weight now and sleeps through the night!! When we went extremely strict with the Keto diet, EMF, spring water, going outside barefoot in sun, orange glasses, etc = MAGICAL things... Ryan turns 7 in September... Our goal is to be around 5 1/2- 6 years old, and we are VERY VERY close!
    Last edited: Apr 27, 2014
  12. Jack Kruse

    Jack Kruse Administrator

    Sistagrok and MrPinkies like this.
  13. caroline

    caroline Moderator

    Amazing success Kate and Christopher and Lizzie and Ryan ...xo
  14. Tanya

    Tanya Gold

    I thought I would mention a wonderful camp "lose the training wheels" that my daughter used to volunteer for a few years during her summer brake. It is designed to help kids with special needs to learn how to ride a bike. They use a specially equipped bikes and with the help of volunteers, after 5 days these children can ride a bike on their own. They have a graduation ceremony during which they all get their certificates - it is hard to describe how happy everyone is on that day, there are so many smiles, hugs and some tears from parents who thought that it would never be possible...
    It is available every summer in almost every state. Here is one of them http://www.pennlive.com/midstate/index.ssf/2012/08/ticket_to_ride_camp_teaches_sp.html
    Alex97232, Shijin13 and MrPinkies like this.
  15. sooperb

    sooperb New Member

    You explained that so well, thank you. My daugher is presently caring for an Autistic man with quite a difficult past. He's in his 60s. We both feel that he could be better than he is but he's had little informed input in his life. She's hoping that changing his diet and stimulating him more he could improve but maybe it's a bit too late for him given what you've said. Still, she's willing to try which is more than his family has ever done.

    You have really invested time in your children, what could be more valuable? When will parents learn that dumping their kids in nurseries when they're very small and then buying them any gadget and gizmo to avoid actually having to interact with them does them such harm. Then there's diet ..............

    Well done, your children sound as though they are well on the way to becoming rounded individuals and that's all down to your love and care :)
    Alex97232 and MrPinkies like this.
  16. davidgolfpro

    davidgolfpro New Member

    Sorry but Autism cannot be improved and doesn't need to be ,we also don't try to make gay people straight, as there is no need and cannot be done!!!

    Please stop posting lies about Autism and diets, it's impossible as the brain was born wired differently to neuro-typicals.


    I am very happy having Autism! It is who I am and always will be!
  17. davidgolfpro

    davidgolfpro New Member

    Please stop trying to avoid the truth that Autism is life long, and why have got issues with his Autism and his personality? Maybe be tolerant and stop trying to change someone, when it's 100% impossible, and Autism is not a issue these days, but the problem is intolerant people.

    Leave him in peace, support him if he asks for it, and just be his friend, that's all he wants.
  18. sooperb

    sooperb New Member

    That's a very strange response. Would you just leave someone you know has been abused? Is that why abuse carries on, because everyone turns their back on it? Do abused people not have the right to a better life??? If you think autism is for life you aren't really getting Jack's message.
  19. Jack Kruse

    Jack Kruse Administrator

    David autism is not a bad thing......it is a thing to be understood. Why it is happening is very important. And I totally disagree that it can not be improved because it can very easily........if you understand it is an electron deficient state on part of the neocortex.
  20. davidgolfpro

    davidgolfpro New Member

    I have Autism, and it cannot and does not need to be improved upon.But we would like support to help us make friends etc...

    Jack, the brain is wired differently to yours and all neuro-typicals,therefore you can't really form a correct opinion on what it's really like.

    Myself, and those with Autism spectrum disorders and specialists in mental health know about Autism, but to everyone else its a mystery.

    So do you think your own brain can be changed???? Ours certainly don't need to be altered, we are perfectly healthy thanks!

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