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I can't sustain any improvement

Discussion in 'Adrenal Rx and Leaky Gut Rx' started by Aerose91, May 24, 2020.

  1. Aerose91

    Aerose91 New Member

    This has been consistent with me since the start of this and I see the same thing with most other M.E. sufferers as well.

    If it's a nice, sunny day and I spend all day out in it with intermittent cold showers, I'll be at my highest baseline. Still mostly non-functional but the best I have been, anyway. The only time that makes me worse is mid-day when the sun is strongest. My Dr believes I have autoimmune encephalitis and I've heard that strong sun exhasterbates AI so I guess I agree.

    Late afternoon when the sun is a little less strong is the best time of day for me- slightly less derealization and my moods are stable. However, my sleep is awful. Even if I'm in bed by 8:30 or 9, I'm rocked awake between 2 and 4 am with intense adrenaline dumps and that keeps me up the whole rest of the night. They only recede when the sun comes up

    The biggest thing is, though, that even if i do everything perfect (DHA, sun, grounding, cooling off- cold will crash me) it isn't sustained. One cloudy day and I'm a complete wreck again. Horrible moods, adrenal fatigue is much more pronounced, depression, sugar cravings, cant even fall asleep. This has been my experience since I've been on this journey from 2015.

    I have a friend in the M.E. community which lives in Rhode Island. She took 6 months and moved to Puerto Rico and felt much better there- less exercise intolerance et al. However, as soon as she returned to R.I. she regressed right back to where she started within a week. I notice this same effect.

    Is this a trait unique to M.E. people? Autoimmune people? Adrenal fatigue? I'm playing with all 3 plus mast cell activation. Why wouldn't improvements ever be sustained?
  2. Aerose91

    Aerose91 New Member

    I should add one more thing and I'm pretty sure this is related to adrenal fatigue- if i dont eat carbs i get zero sleep. It's awful. I'm currently back on the GAPS diet because that has seemed to give me the most stability in the past but it is inherently low carb. Fat doesnt make up the difference for me. I wont eat grains or anything so I'm left with a few vegetables but they never are enough to allow me to sleep. Any ideas how I can fix this?
  3. JanSz

    JanSz Gold

  4. Aerose91

    Aerose91 New Member

    I appreciate you posting that. I actually have tried raw goat milk kefir that I make myself several times and it mauls me. Actually, I feel worse after any fermented food. I know the jury is still out on if fermented foods feed candida or kill it but all I know is they make me feel like hell. Figuring out the sleep thing would be a nice step
  5. Jack Kruse

    Jack Kruse Administrator

    Serotonin is a protein made from an aromatic amino acid and it must be programmed by full-spectrum UV sunlight. When you are in full-spectrum artificial light you deplete your body and brain of serotonin. Serotonin is made in the eyes, skin, and gut in humans.
    The expression of serotonin (5-HT) in the retina was first reported in the 1960s. The detection of vesicular monoamine transporter and serotonin receptors in several retinal cells confirm that 5-HT is playing a neuromodulatory role in this structure. Whereas signaling pathways activated by 5-HT receptor binding have been poorly investigated so far, numerous data demonstrated that 5-HT is involved in retinal physiology, retinal physiopathology, and photoreceptor survival.
    The eye is a remarkable photosensor, can detect a single photon and transmit its signal to the brain. The receptors for light in the vertebrate eye are the visual, photoreceptor, cells of the retina. Each visual cell comprises two principal parts: the outer segment, which contains light-absorbing visual pigments, and the inner segment, which contains the nucleus, mitochondria and other subcellular organelles and which metabolically supports the functions of the outer segment. The segments are connected by the ciliary process or cilium. The inner segments of visual cells have terminals that synapse with horizontal cells and bipolar cells. The bipolar cells, in turn, form synapses with ganglion and amacrine cells. All of these cells have the enzymes that create serotonin which is tryptophan hydroxylase.
    It turns out serotonin is important for keeping melanopsin damage in the retina and arteries from occurring. I believe this is one of the key undiagnosed things going on in C-19 that few people realize that lead to clinical deterioration.
    What happens as a result? You become unable to handle acute stresses. This is why EHS, chronic fatigue, infertility, poor libido, and poor sleep all are related to melanopsin damage caused to serotonin photoreceptors. The absence of serotonin in the brain alters acute stress responsiveness by interfering with the genomic function of the glucocorticoid receptors. When these receptors are altered they no longer work as they should. When this process begins in the eye and ends in the brainstem humans get a condition called adrenal fatigue where it appears there is a global dysfunction of how their hormone receptors operate. This paper lays out the physiologic basis of this process that most allopathic doctors deny or are ignorant of the mechanisms due to a lack of knowledge about how light sculpts life. Become a member and learn more about this mechanism to stay well. https://www.frontiersin.org/articles/10.3389/fncel.2020.00128/full
    Desert.life and Richard Watson like this.
  6. Can we make serotonin, dopamine and melatonin when the UV index is non-existant during higher latitude winters?
  7. Jack Kruse

    Jack Kruse Administrator

    Not well.
    Sean Waters and Matt Fowler like this.
  8. Ok. The science is starting to drop in to place for me now and I am surprised at how much better I feel about my health and life circumstances :)
  9. Jack Kruse

    Jack Kruse Administrator

    When you cannot sustain improvement it means = your environment is beyond bad and/or your colony of mitochondria cannot respond because the change programs are being hindered by your environment or heteroplasmy rate is too high.
  10. That must be me then - the summer sees me doing well, but then I drift back during the winter.
  11. Ibrahim

    Ibrahim New Member

    That’s real heart breaking to hear. Feels like we’re living in hell.
    Matt Fowler likes this.
  12. JanSz

    JanSz Gold

    Hell is a choice. Heaven is a choice.
    Buy Bitcoin (so you can afford payments to get healthy).
    Open windows.
    Go outside.
    Take off your glasses.
    Take off your clothes.
    Do not use sunscreens.
    Take cold shower.
    Do not eat wheat.


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