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Cycloset and FBG update, oh my!

Discussion in 'The Leptin Rx' started by kathylu, Aug 8, 2012.

  1. sharon@gohomeky.com

    sharon@gohomeky.com New Member

    I understand treatment with Cycloset ( as well as any drug for that matter) is individualistic. And I understand that Cyclsoet is helpful in helping address adrenal issues and fasting blood glucose (among many other things). But what I'm trying to find out is: at what point can one stop taking it? If you reach optimal cortisol levels and maintain them for 6 months, do you then stop taking it? Or might you need to take it forever?

    My doctor is open-minded and has been willing to read the information on it I've passed along but neither of us can seem to find any guidelines for specific markers that mean you've attained your goal(s) with Cycloset and, if you have reached them (whatever they are), how does one determine how long to stay on Cycloset?

    I could spend an hour here spewing lab results to justify my reasons for wanting to try Cycloset, but I'm not here to ask anyone whether I should try it. I'm here to find the information needed for my doctor so she will feel comfortable prescribing it and overseeing my treatment with specific goals in mind.

    Are these questions to which the answers are unknown or is it just that no one wants to tell me what they are? I'd like to become a Kruse fanatic, but I've spent 3 days reading blog posts on this site and I can't find the information my doctor wants to educate herself on this topic, which is a primary stated purpose of this site according to Jack.

    And yes, it would be nice if I had extra money to set up a personal consultation with Dr. Kruse, but I just don't at this point -- I've spent all I have and then some on doctors who didn't help or labs that show my adrenals, hormones and gut are still out of whack (which I already knew) and after trying everything for 2 years, I've improved but have been stuck for most of the past year. When I read about Cycloset, it seemed like just the thing I was looking for, but again, no one seems to be willing to share the secret sauce (the outlines of how to determine how much to take and how long to take it.

    Could someone please help me?
     
  2. Jack Kruse

    Jack Kruse Administrator

    Then google cycloset and resetting of the circadian cycles print up what you find make a simple one page summary and bring it to your doc. It was made for T2D and approved for use in 2009. It raises AM cortisol by affecting the clocks in the liver. Your doc probably has not heard of it because no drug reps detail it. Once you bring them info from the PDR they will see it is for real and then they should be able to research it for themselves. They also can call the pharamcy up in their area. I would strong suggest you PM Shijin on the form and ask her how she got her doc to pay heed. I can lead you to lead the docs to water........but I cant make them drink. You can........because they are hired by you.
     
  3. sharon@gohomeky.com

    sharon@gohomeky.com New Member

    I have already Googled Cyclcoset and resetting circadian cycles and have information about the drug itself, but again, there is no general information out there on the specific protocol you're recommending because you're the one who developed it. I can submit drug information all day long to my doctor and she will read it, but I'm trying to convince her that your protocol is helpful except I don't know what it is.

    Everyone seems to want to talk around this but not actually answer the questions I've posed and I don't know why. At this point I'm so frustrated with begging and pleading for help on here that no one seems willing and I don't get why this is. If this knowledge exists and the true purpose of this site is to educate patients and doctors, why is it such a battle to get my questions answered? Do I not deserve to get well unless/until I can afford to spend more money?
     
  4. Jack Kruse

    Jack Kruse Administrator

    sorry I did not develop cycloset. You take it once a day in the AM........what is so hard about this? Your doc just needs to read the package insert and decide if it is for you or not.
     
  5. Shijin13

    Shijin13 Guest

    the mfr website talks about cycloset impacting BG via increasing dopamine in the am... it can be found here: http://www.cycloset.com/how-cycloset-works.htm

    key point to note - when my pcp talked to the cycloset rep - he/she informed her it impacts the post-prandrial bg readings... not FBG -

    Jack didn't spoon feed this to me, I went out and found this information, and read it until I understood what it did so that I could explain it to my pcp. but I have different issues than you, so my N=1 will not be the same for you.

    As for Jack's protocol - he's using the drug as designed, to address low am dopamine instead of BG. here's the kicker - they're related, you can't separate one from the other, b/c they're part of a system that makes up your body.
     
  6. sharon@gohomeky.com

    sharon@gohomeky.com New Member

    I already know it's taken once a day, which is why I didn't ask that question. I did, however, ask several other questions repeatedly that you don't seem to want to answer, so apparently the goal of this forum is not actually to help or educate those who need it since I haven't received a single answer to a question that I actually asked.

    When I registered on this forum, the email I received said you welcome my questions....then why am I getting the runaround for asking them?
     
  7. Shijin13

    Shijin13 Guest

    We're trying to help answer your questions, several of them most of us don't have answers too b/c we've only been on the medication for a short time period. My doctor ran an ASI prior to me starting the cycloset. We just ran another one and we'll see where I'm at, along with my IGF-1, among another labs. once we get them back we'll see where I'm at and re-assess.

    But here's my plan. I will take it until at a minimum my ASI is perfect, my Pg:E2 ratio is in the top quartile, my hypothyroidism is managed appropriately, my sleep is no longer disrupted across my monthly cycle, I'm migraine free, I see body comp changes, FBG is below 85 for more than 1 day and I no longer have PCOS symptoms. These are my minimum requirements for considering getting off this drug - I've got close to 40yrs worth of epigenetics to reverse - and I've been working on my health problems for the past 9years already. Only now in the past year am I starting to make headway.

    Jack hasn't given any of us a "Stop" taking point - b/c each of us is different. each of our specific conditions have contributed to our current situations - and its not going to resolve unless you fix the whole shebang, and its going to take time. I'm not sure if I helped...but I did try, based upon what I know given my n=1, which does not correlate to others for how they should consider taking a medication....
     
  8. caroline

    caroline Moderator

    You have to remember a couple of very important things - I understand your frustration .... but Dr. Kruse can't practise medicine on the internet - He gives us lots of clues and ideas and tons and tons of information - but you have to do the research as Gretch just said. It is important to understand each of our context is very different and Dr. K has to walk a really fine line - He gives us lots of help but definitely can't give you specifics - you need a partner Doc to do that with you ...... your personal context is everything. If it seems like he is giving some of us help with specific things it will be because we have had paid for consults with him and have signed a waiver and also - in that case, we are silver or gold members and somewhat participate in keeping this site alive financially. There is a ton of research out there and he is shinning his flashlight for us to see the road ... you and your Doc have to do the work. Sorry - I don't mean this to sound harsh - we all have struggled to find our own Doc who will participate - and some on here have struggled for a very long time to find a Doc and still can't.. Here on the other side of the world - it can be a wasteland in this regard - we can't find anti aging Docs- testing is horribly expensive and so are supplements that you in the U.S. take for granted. Good luck on your journey to wellness - we will support you in any way we can.
     
  9. Jack Kruse

    Jack Kruse Administrator

    bingo..........
     
  10. MamaGrok

    MamaGrok New Member

    I posted this earlier, and it disappeared... B/c Jack just said that the cycloset's primary MO is via circadian changes to benefit the adrenals, I had to ask what you think of this.

    I recently learned of a circadian T3 protocol that is supposed to help adrenal recovery without having to resort to cortisone. Search "Paul Robinson circadian T3" and you can find videos & websites about it. (This forum won't let me put in more than one link, so I won't.)

    You just move a portion of your T3 (or NDT) to 2hrs before you normally wake, and take the remaining portion of your regular dose throughout the day as normal.

    I've been doing this for two weeks, and the change is clear. I literally cannot remember a time in my life when I didn't feel like death in the morning. Lethargy extending for hours after waking, never feeling refreshed even after 9-10hrs of sound sleep, headaches every morning for 30m or more after waking... I can now wake feeling fully rested, and the headaches & sluggishness are drastically reduced. Each day I do it I see more improvement.

    (DH gladly took on the alarm & med responsibilities so I can take it and go right back to sleep, b/c he has seen how well it's working!)

    Is there any reason to believe this would or would not offer similar benefits to something like Cycloset, especially for those of us already on T3 or NDT and *without* FBG problems? http://www.stopthethyroidmadness.com/t3-circadian-protocol-for-adrenals-2/
     
  11. sharon@gohomeky.com

    sharon@gohomeky.com New Member

    I've been using the CT3 protocol since July with very minimal results. I know others have had huge benefits, but that has not been the case for me.

    As to the "you and your doctor have to do the work" response, I don't find that helpful at all. I am well aware of the laws regarding practicing medicine online as I spent much of my career teaching people about marketing on the internet, including the legalities of what can and cannot be posted. Most doctors with an online presence who truly want to help will do so by using case studies of clients/patients with various issues and you can learn the key information from those. Failing that, posting detailed testimonials from patients who've had success using a particular protocol are educational as well since, again, one can glean critical points of information from those stories.

    Since this site has neither of those and the one person here who apparently DOES have the answers to the questions I ask won't even give general information as a response, I leave here with no additional information and a very bad taste in my mouth from Dr. Kruse's "helpful" suggestions. In the time it took to write the various non-answers given here, he could have given one helpful answer, which would have helped educate me and my doctor which again, is the "supposed" purpose of this site.
     
  12. caroline

    caroline Moderator

    I can't imagine why you would want to read some one else's case study and apply it to yourself ... to me that is being irresponsible - your Doc should be doing the heavy lifting in that case. As Dr. K would say - this stuff is much more facile in his brain than in ours... so when we have a consult he can apply his knowledge and expertise and clinical experience to our situation ... but we still need to have a partner Doc to facilitate.
    Dr Kruse has taught/is teaching us to research and think for ourself - we are all unique - what works for someone else is not our n-1 - it is dangerous to think otherwise. But he definitely goes above and beyond for everyone here who participates
     
  13. Jack Kruse

    Jack Kruse Administrator

    Glad you said what I was thinking..........
     
  14. caroline

    caroline Moderator

    my pleasure .....I always thought I was a lover not a fighter but something has changed.........
     
  15. Destiny

    Destiny New Member

    Caroline, your primal instinct is back [​IMG]!!
     
  16. MamaGrok

    MamaGrok New Member

    I couldn't remember what specific question it was that you had asked that wasn't answered, so I finally went back through all your posts and found this one. My honest opinion is that Dr. Kruse doesn't have time to read through all the posts here (I know I don't), nor does he have time to read through really long posts (I know I don't), and that he didn't see this specific one (I know I didn't)... and that none of the rest of us know the answer to the question.

    Your proposal of 6 months at optimal levels seems reasonable, but I just have no way to know that. The other questions you asked, that I recall, were definitely too case-specific for anyone to know without the context of your health history.

    As far as specific testimonials of success, check the front page of this website for my video, or the link in my sig for my journal. They are both very, very specific, the longer more so than the shorter, obviously. The first page you click on from the link I give in the video gives something probably similar to exactly what you're looking for, but for the leptin reset, not other particular aspects of Dr. Kruse's various protocols.
     
  17. Shijin13

    Shijin13 Guest

    this made me LOL!
     
  18. caroline

    caroline Moderator

    yesterday I was really wound up for a couple of reasons - I headed to the ocean and stayed there until the sun set! ...... primal therapy in action[​IMG]
     
  19. Charlotte

    Charlotte New Member

    Caroline, you are a sweet and patient woman and you are a lover, even when you are fighting.
    And I actually think that Dr. Kruse is taking the time to read ALL threats. But I also think that he is trusting that we use our brains and find answers to our questions ourselves or with the help of our practitioner. And then there are questions, to which the answer needs time, trial and error and/or success.
    And more often than not the answer lies in the question.
     
  20. caroline

    caroline Moderator

    I really surprised myself - Maybe I should get myself some boxing gloves [​IMG]
    We are being given so much ...and I guess for some ...it is never enough.....
     

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