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Anyway to restore Muscle Memory, Lost Myelin Sheath, Dead Nerves for surfing?

Discussion in 'Optimal Fitness' started by snick, Aug 7, 2016.

  1. snick

    snick New Member

    I've got a disease (chronic inflammatory demyelinating polyneuropathy, or CIDP, for short) that has killed more than 75% (I'm guessing) of the myelin sheath surrounding the nerves in my lower legs and feet, leading to mucho mucho muscle atrophy and the loss of 75% (guessing, again) of the muscle memory I use (or did use) to surf with. And surfing is the *only* thing I care about. But now every session is 75% spent re-learning (re-remembering?) how to do what I've done for decades. And I only get comfortable again once I'm about (yup, you guessed it) 75% exhausted.

    I've been through all the traditional treatments that my traditional doctor will allow me to try, with no success.

    At this point, my main interest is in not losing any more muscle memory and/or trying to get some of that brain-nerve-muscle connection back. I'm only interested in extending my surfing life, altho if other benefits accrue at the same time -- and the disease has many other nasty effects -- I'll happily take them.

    Thanks for any thoughts you might have.
     
  2. Jack Kruse

    Jack Kruse Administrator

    CIDP is an AI and is inheretnly linked to environment that is taking energy from the environment and hiding it from your neurons. You must change that environment to change the signals in your mitochondria to rebuild you.

    You don’t overcome challenges by making them smaller but by making yourself bigger by thinking deeper about what caused them
    We do not need answers to everything in life, we want to have answers to find. We are hunters for natural truths to our problems.

    Without our biological, or circadian, clock we would be sleeping in multiple episodes spread over the 24-hour day and our performance would not be stable in each wake bouts. This is linked to the levels of brain derived nerve growth factor (BDNF) in the brain/nerves. Brain derived nerve growth factor (BDNF) levels are markedly altered when ubiquination is off kilter. Ubiquitination is off kilter by a non solar spectrum of light in our environment. Ubiquitination is linked to altered light cycles = circadian disruption. BDNF increases new neuron sprouting and new growth in our brain, but the newly created circuits have to be pruned by the action of melatonin at night, during autophagy. This is how % heteroplasmy rates are reduced by sleep. If you have a circadian mismatch because of blue light toxicity, you do not release melatonin properly at night, so you never optimally prune these new arborizations. As a result, your brain does not work well. This can lead to many disease phenotypes like CIDP or to obesity. The key to disease phentype is what tissues is the mitochondrial damage occurring?

    This loss of BDNF levels really affects oscillations of the mitochondria in the paraventricular nucleus (PVN). Here the 100 Hz frequency vanishes and fat burning in these mitochondria stops. This was the focus of the June 2016 webinar. You might want to listen to it. Without fat burining myelin cells have to default to a Warburg metabolism and this is inefficient to make energy needed to myelinate massive arrays of nerves in your extremities. The eye and skin affect the PVN in non linear fashion and this is where adrenal fatigue and CIDP symptoms begin to manifest.

    The effects of BDNF are similar to drug addiction in several studies you can read on pubmed. So when you start exercising, or grounding in the ocean the feeling of euphoria is the highest at the beginning, and it goes down from there because of the effect of heteroplamsy. BDNF and endorphins are supposed to be yoked by our circadian cycle in their release, but when you are blue light toxic they are no longer yoked. They become uncoupled because of a loss of calcium signaling. Excessive blue light via the eye and skin chronically causes altered calcium flows into mitochondrial which altered the oscillations of the mitochondrial membrane in your myelin cells. Grounding, by walking at the sea's edge is a great medicine for CIDP especially if the sun is out on your nake skin and unprotected eyes. Unopposed blue light and nnEMF destroys beta oxidation in the tissues it is sensed in. In CIDP this occurs in the peripheral nerves but the initially effect is in the grey matter of the brain. What protein controls this "light timing" mechanism in all eukaryotic cells? Calcium/calmodulin-dependent protein kinase type II. I've mentioned this in blogs in a tangential way. nnEMF and blue light destroy this process of calcium signaling.

    Today neurologic research shows the release of endorphins have an addictive effect, and more exercise is needed to raise endorphins when there is a mismatch to light to achieve the same level of euphoria over time. This is why LDN is successful in SOME cases CIDP, adrenal fatigue, poor sleep, and in autoimmunity, because endorphins are missing from the neuronal sprouting effects of BDNF. Those cases are rare and related to the % heteroplasmy in the brain's mitochondria in the hypothalamus.

    Variation in the BDNF gene also affect brain's regulation of appetite and sleep according to new research done on grey matter nuclei of the hypothalamus. http://snip.ly/m978p#http://www.medicalnewstoday.com/releases/311210.php
     
  3. Jack Kruse

    Jack Kruse Administrator

    surfing protects you because it water is the ideal Faraday cage.........this tells me that something on land is really toxic for you. The other unlikely possibility is that you live next to a military base who is using massive EMP weapons in the water and this could hinder you but I have no idea if you are close to a place like this.
     
  4. snick

    snick New Member

    Hmmmm. While I try to sort out your response, which isn't going to be easy, given a certain amount of CiDP-related brain fog, and look for action steps I can take, let me respond to a few things.

    You write: "So when you start exercising, or grounding in the ocean the feeling of euphoria is the highest at the beginning, and it goes down from there because of the effect of heteroplamsy." As with many sports, surfing is an endorphin bomb. For me, it starts the second my toes touch water and ends when I leave, with no decline along the way. That said, if I'm in the water for two hours, it takes me about 80 minutes to establish a reasonable brain-leg connection that will allow me to surf with some of my old skills and try to add new ones. I think this is because nothing works "right" until I quite nearly exhaust such muscles as I have left and get them to do what I want instead of what they want. My "good" period last for about 30 minutes, after which my abilities go straight into the trash, although the endorphin level stays high. I wish I could figure out a way to extend that 30 minutes. As it stands, that's not enough time to develop muscle memory, whereas that first 80 minutes, full of mistakes and failings and mixed up feet, is long enough for my brain to learn the wrong stuff. Ugh.

    I do not live near a military base and never have. I fully understand the addictive properties of endorphins but have not experienced a need for more exercise in order to get the same ol' high. I tried LDN, to no avail. I have no problems with body fat, never have. I've always been skinny but am now super skinny, due to the atrophy. My sleep needs are very high. I'm asleep by 8pm and get up at five to go surfing (or mess around in the house, if there are no waves). To combat constant fatigue, I take a minute amount of Adderall daily (like 5mg). At 9 am, I take the first of three daily 1/2 - 1 hours naps. I'd rather not nap so much, but the need is undeniable when it hits.

    Well, enough. Any further thoughts? Any questions I can answer? Anything obvious that I should be doing?

    Thanks very much for weighing in.
     
  5. Jack Kruse

    Jack Kruse Administrator

    I would strongly suggest hacking your environment.......something in it is destroying your mitochondria in the immune system
     
  6. snick

    snick New Member

    Got it. Thanks!
     
  7. JanSz

    JanSz Gold

    If you live within range of Spectracell laboratory you may want to try their
    Micronutrient analysis.
    They do functional testing of micronutrients.
    That is significantly different than the usual tests.
    But they need no more than one day old blood, but are considering 2 day (with disclaimer).
    spectracell.com
    https://www.spectracell.com/order/

    (Latter) to any of their findings I would add 50mg/day iodine/iodide (Lugol's) on top of any that comes with food.

    Spectracell suggestions to correct deficiencies are quality supplements.
    You may want to re-analyze that part and if possible convert that to foods you would eat.
    That go majorly for vit A & D.
    I assume that surfing , your pastime, means that you are exposed sufficiently to sunlight (when not suit up)
    but vit A & D (if deficient) may require additional carotenes and sulfur (food).

    Additional doses of red and IR-A are highly beneficial.
    Indoor use only old fashion incandescent light (plus red & IRA).
    Instead of incandescent, fulls spectrum reptile lights (Exo Terra Solar Glow 160W)
    Indoor, after sundown use only red and IR-A for lighting.

    Ask @Jack Kruse about Quantlet (lattest version)

    Good circadian rhythm (the shape of curve) and good (absolute value) cortisol(AM) is a must.
    Do saliva/urine 4x (more points better) cortisol/melatonin test. (ZRT from amazon.com) (must be close to the top curve).

    https://www.amazon.com/Sleep-Balance-Profile-Dried-Urine/dp/B00ZAJY5SO/ref=sr_1_1_a_it?s=hi&ie=UTF8&qid=1470661518&sr=8-1&keywords=zrt melatonin

    https://www.amazon.com/Diurnal-Cortisol-Cx4-Hormone-Imbalance/dp/B0087US47Q/ref=sr_1_4_a_it?ie=UTF8&qid=1470661433&sr=8-4&keywords=zrt saliva

    Sleep in totally darkened room (not even a peep at tv or computer or cell phone).

    Get trimeter to help you with nnEMF searches as suggested by @Jack Kruse
    https://www.amazon.com/Trifield-100XE-EMF-Meter/dp/B00050WQ1G
    If able hire EMF specialist.
    EMF -- ElectroMagneticFrequencies
    You are using glasses.
    Do not.
    Nothing between you and sunlight.
    No sunscreens, creams on skin, windows, no glasses, no contact lenses.
    Expose max skin.
    Surfing you are using suit and goggles that defeats benefits from sunlight and grounding (minimize that).
    Use kiniki wear, allows sunlight thru.
    http://www.kiniki.com/

    BodyBio Fatty Acid Report (Doctor's Report)
    could help a lot
    http://www.bodybio-wellness.com/aboutbodybio.html

    lots of butter and butyrate
    http://www.bodybio.com/storeproduct361.aspx
    no mustard, canola oil, peanuts, peanut oil

    No fish/krill oils
    See Fatty Acid Report if seafood is good for you.

    Get 1-58
    blood test
    https://forum.jackkruse.com/index.php?threads/pg-e2-ratio.6427/#post-81508

    @snick
     
    Last edited: Aug 8, 2016
    Christopher72 likes this.
  8. snick

    snick New Member

    Ah, well, thanks so much for all the actionable advice. I've got a Spectracell collection lab in my town but I find it very off-putting that Sp doesn't list prices on its website, thereby forcing you to call them or similar. Have any idea what the micronutrient panel might cost?

    I did a search on iodine and among other things found the following, which suggests it'd be good for me to start on iodine asap regardless of what else I do: "Iodine is essential for the production of a thyroid hormone that is involved in the methylation process, which in in turn creates the methylcobalamin needed to build the myelin sheaths, the fatty protective layer around nerves which break down in people with MS. You would have even better results adding drops of Lugol's iodine into a smoothie while taking a methylselenocysteine supplement (selenium is essential for displacing halogens bound into iodine receptors. Also if you take iodine while selenium deficient it will exacerbate that deficiency and affect your thyroid)."

    My disease does have some MS-like elements to it. And, I am taking levothyroxine for hypothyroidism.

    I'll definitely look into the rest of what you say, as time permits.

    I never surf with goggles. I don't expose my chest to direct sun. I got a very bad, very major sunburn several eons ago and ever since, just a little sun on the chest leads to the eruption of super painful little itchy bumps all over. My legs and face are, however, fully exposed. And, I don't use sunscreens or anything like that. Besides surfing, I also get sun riding my (electric) bicycle an hour a day. But I do wear glasses for that, since if I didn't, I'd run into the first tree I didn't see and wind up in the ER.
     
  9. JanSz

    JanSz Gold

    "actionable advice."
    yes
    ---------------------------------------------------
    Spectracell list their products and prices.
    And in most states you do not need script, just cash.

    https://www.spectracell.com/order/
    QTY COST
    Micronutrient Test (MNT)$ 390.00
    CardioMetabolic Risk$ 150.00
    Telomere Test$ 290.00
    MTHFR Genotyping$ 140.00
    Apolipoprotein E Genotyping$ 140.00
    Female Hormone Panel$ 150.00
    Male Hormone Panel$ 150.00
    Thyroid Comprehensive$ 100.00
    Thyroid Comp. Plus Adrenals$ 130.00
    Home Blood Draw$ 75.00

    ============================================
    Iodine/iodide are very important in thyroid work, but it take most of the press.
    But gram for gram, there is much higher need for it in other places.
    Besides
    we need huge overload of it to fight of invasion.
    Iodide is halide.
    There are other halides (that are imposters, and take place of iodide in our bodies)
    bromide (bread, pasta, spa water)
    chloride (water)
    fluoride (tootpaste)
    ------------------------------------
    Make sure that you have plenty of selenium.
    Better just do Spectracell first.
    ------------------------------------

    Levothyroxine, also known as L-thyroxine, is a synthetic thyroid hormone that is chemically identical to thyroxine (T4).

    Often it does not work.
    Natural hormone from pigs is better.

    You must have
    good cortisol
    and
    Circadian Rhythm for the thyroid hormones to work correctly.
    --------------------------------------
    Dr @Jack Kruse Kruse is highly into mitochondria and %heteroplasmy
    Results of Spectracell Micronutrient Analysis are helping in minding your
    Mitochondria, Phospholipids, Fatty Acids and many other health aspects.

    https://www.spectracell.com/webinar-saving-the-mitochondria/
    Saving the Mitochondria
    Presented by Dr. Bernarda Zenker

    Topics of Discussion:

    • Review the role of mitochondria in health and wellness
    • Provide an understanding of the causes of mitochondrial dysfunction
    • Discuss interventions to enhance, support and protect cellular mitochondria


    //
     
  10. Barry

    Barry New Member

    Snick, everything should be made simple, but not simpler.

    What we do today is attempt to make complicated problems more complex.

    Jack has his levees. And yes, its complex. He knows its simple though. Here you go:

    JK.png
     
    JoeBranca and Danco3636 like this.
  11. Lahelada

    Lahelada New Member

    Welcome snick. What Barry said .An additional bit of knowledge would be that the healers need to be applied in the order they are listed.
     
  12. Danco3636

    Danco3636 Silver

    And somewhere in that comes CT
     

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